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VP Biden Addresses CURE Gala

June 22, 2011 By WHC Insider

David Axelrod, Susan Axelrod, Lauren Axelrod and Peter Sagal

David & Susan Axelrod with daughter Lauren and NPR's Peter Sagal

Vice President Joseph Biden shared his deeply personal story of brain trauma at the annual Citizens United for Research in Epilepsy (CURE) fundraising gala on Tuesday. He told the Chicago crowd gathered at Navy Pier’s Grand Ballroom about the life-threatening aneurysm and two subsequent seizures he suffered in 1988. Biden called epilepsy “a terrible lightning storm in the brain.”

“It’s amazing what we don’t know about how the brain functions,” Biden said. “For the first time in human history, significant resources and human capital are being applied to unlock how to catch that lightning.” REUTERS has more on the story.

CURE was founded in 1998 by Susan Axelrod, wife of former White House senior Adviser David Axelrod, and other parents frustrated with their inability to protect their children from the devastation of seizures and the side effects of medications. The Axelrod’s daughter, Lauren, lives with the disease.

“There is no lonelier feeling — and many of you have experienced it — when you know your child has a chronic illness which can’t be controlled,” David Axelrod explained.

Epilepsy affects over 3 million Americans of all ages and some 50 million people worldwide. It can develop at any age and may be a result of head injury, brain tumor, stroke and many other unknown causes.

“I can only image what it’s like to stare at your child while their eyes roll back in their head,” Biden said, quoted in The Chicago Tribune. “But the truth is, I believe with every fiber of my being that (a cure) is just around the corner.”

Chicago Mayor Rahm Emanuel and Illinois Governor Pat Quinn were among the 900 people attending the gala that raised almost $800,000 for the nonprofit organization. In addition to the Vice President’s keynote speech, the event featured Peter Sagal, Host of NPR’s “Wait Wait… Don’t Tell Me.” Since its founding, CURE has raised $15 million to fund epilepsy research and has has awarded over 107 cutting-edge projects.

More information about CURE can be found at cureepilepsy.org. WHCI is proud to support the work of CURE and if you would like to donate, please click HERE. The video below premiered at the annual CURE gala and features poignant, personal stories of families who have battled epilepsy.

Filed Under: News Tagged With: Chicago, CURE Epilepsy, David Axelrod, Pat Quinn, Rahm Emanuel, Susan Axelrod, Vice President Joe Biden

Axelrod-Milstein Team Up for Epilepsy Research

December 10, 2010 By WHC Insider

Hundreds gathered at the Newseum Wednesday evening to recognize the scientific work of CURE Epilepsy, raise awareness, and to honor 2010 Friend of CURE Awardee, longtime television producer and WHCInsider’s own Tammy Haddad.

Susan Axelrod, Chair and founding member of Citizens United for Research in Epilepsy, was on hand to mark the special occasion. Axelrod and Connie Milstein, CURE supporter and noted philanthropist, co-hosted the event.

Connie Milstein, a CURE board member, announced the Axelrod Milstein Challenge Grant. It is a $500,000 two-year program. CURE Challenge Grants are CURE’s most prestigious, and fuel the much needed research to find the key to the cure of this dreaded disease.

“Susan works tirelessly to find a cure for epilepsy and seizure disorders. Like many families across the world, the Axelrods live with this disease every day, but their work, their strength, and their optimism give hope to so many, as they fight and live for a cure,” said Milstein.

Susan Axelrod described the lack of progress and the difficult research road ahead:  “With so many troops returning from war with traumatic brain injuries and epilepsy, the need is more urgent now.”

Axelrod, along with her husband David, was desperate to find answers when their own daughter Lauren was diagnosed with uncontrollable epilepsy at 7 months old. Twelve years ago, CURE was founded by Axelrod and two other mothers around a kitchen table. Many members of the CURE family were on hand last night and gathered on stage for a group photo and greeted with a round of applause.

The room was a living tribute to CURE and Ms. Haddad, as devoted friends from both sides of the aisle raised a glass to what many have called a “force.” Haddad used her annual White House Correspondents Weekend Brunch to raise awareness for CURE after seeing Susan and Lauren Axelrod on the cover of PARADE magazine, and later on NBC’s The Today Show.

“I chased her down for weeks to get her to host the Correspondents Brunch because I wanted to help. Here was a chance to use a HUGE platform for an important message,” said Haddad. “What did she tell us? No parent, no child, no family — no person should have to suffer and experience the pain of epilepsy.  That is her goal…and since she is unstoppable we know she will reach that goal.”

Cabinet appearances by HHS Secretary Kathleen Sebelius and Labor Secretary Hilda Solis, Dr. Howard Koh, NIH’s Story Landis and Dr. Tony Fauci.

The audience roared as a video roast of Haddad began with David Gregory anchoring a “Meet The Press” open lamenting the lack of agreement on anything in Washington except in friendship and respect for Haddad.  Also in the video: ABC’s Jake Tapper from the White House, Greta Van Susteren and John Coale.  Jon Meacham roasted the longtime network and cable news producer by reminding the audience that Christopher Buckley put her in his novel “Thank You for Smoking.”  Haddad’s former MSNBC’s colleagues, the “Morning Joe” team – Joe Scarborough, Mika Brzezinski, Willie Geist, Mark Halperin and Harold Ford taking turns trying to figure out what award Haddad hadn’t won yet while praising her work for CURE.

The surprise ending was a song written and performed for Haddad by Glee superstars Matthew Morrison and Jane Lynch.

Among those there to help celebrate: Rima al Sabah, the Kuwaiti Ambassador’s wife; British Ambassador to the US Nigel and Julia Sheinwald; AFT President Randi Weingarten; Tom Oliphant, Mary Louise Oates and Robert Shrum.

Politicos aplenty including Bloomberg’s Kevin Sheekey, Joel and Lisa Benenson, Jim Margolis, Susan Sher, Stephanie Cutter, Julianna Smoot, Dan Pfieffer, Eric Lesser and Jen Psaki.

Arizona Attorney General Terry Goddard fresh from a Supreme Court appearance, along with crowd favorite Terry McAuliffe; Tony and Heather Podesta; Podesta Group CEO Kimberly Fritts and hubby, Marion Turner; Holly Page; Bruce Reed and Bonnie LePard.

Media biggies included Wolf Blitzer, Howard Fineman and Amy Nathan, Lynn Sweet, Betsy Fischer (producer of the surprise video), Andrea Mitchell, Gloria Borger, Roger Simon, Annie Groer and Hilary Rosen.

Both republican and democratic political operatives included Bob Stevenson, Jane Oates, Dan Meyers, Erica Elliot, Rich Galen and Tom Synhorst.

Designed by Jacquie Bloom, the Newseum’s Knight Center was aglow in CURE red. Guests enjoyed the pomegranate martini ice luge and the ice cream sundae bar.

CURE is in the middle of their Every Dollar Counts Every seizure Matters campaign.  To donate CLICK on CUREEpilepsy.org.

Filed Under: Washington Tagged With: Andrea Mitchell, Austan Goolsbee, Connie Milstein, CURE Epilepsy, David Axelrod, Dr. Howard Koh, Gloria Borger, Hilary Rosen, Hilda Solis, Jake Tapper, Jane Lynch, Kathleen Sebelius, Kimberly Dozier, Matthew Morrison, Meet the Press, Morning Joe, Story Landis, Susan Axelrod, Susan Sher, Tammy Haddad, Terry McAuliffe, Wolf Blitzer

Mika Touts Fashion And Epilepsy Research

September 16, 2010 By WHC Insider

While New York wraps up its Fashion Week, DC had it’s own celebration of fashion mixed with a great cause spearheaded by Susan Axelrod, founder of CURE Epilepsy.    Mika Brzezinski, of Morning Joe fame brought her great fashion sense and even bigger heart to the J.McLaughlin Clothing store to benefit CURE Epilepsy at the Georgetown shop.

Mika Brzezinski and Susan Axelrod

Amongst a colorful display of handbags, sweaters, and dresses,  glittering media (the sparkly Mike Allen and Morning Joe’s Louis Burgdorf) and government officials (FLOTUS Chief of Staff Susan Sher) picking up some of the latest trends for fall.  A percentage of the proceeds go straight to fund research to find a cure for epilepsy.

Fashion plate Postie Jonathan Capehart bought a nice selection of shirts, and Politico’s Mike Allen got a shirt and tie combo while Quorvis’ Kelly McCormick picked up the perfect little black dress.

CURE board member Gardiner Lapham and her mother were in attendance and  J. McLaughlin CEO Steven Siegler charmed the crowd offering wine and cheese and great cheer.   Debbie Dingell,  Jayni Chase and Marc Adelman, Patrick and Anne Gavin, and other Georgetown socialites chatted with Axelrod as she posed with supporters and friends.

What is more fitting in Georgetown than a parting gift of a Georgetown Cupcake in a blue J. McLaughlin box!

Check out more photos below:

Filed Under: DC, Event Coverage, News Media, Washington Events Tagged With: Charity, CURE, Epilepsy, Georgetown, J. McLaughlin, Mika Brzezinski, Mike Allen, Susan Axelrod

Tribute to Moms at WHC Garden Brunch

May 4, 2010 By WHC Insider

2010 WHC Garden Brunch: Story Landis, Susan Axelrod, David Axelrod

While at the 2010 White House Correspondents’ Garden Brunch, guests were asked to share the best advice from their mother in honor of Mothers Day Every Day and CURE Epilepsy.

Some of the answers from the media, business, and political elite who stepped across the lawn at the 18th annual brunch are posted below – and be sure to WATCH the video of the tribute to two important causes which affects the lives and health of families all across the globe: maternal mortality and epilepsy.

Susan Axelrod, Founder & Chair of CURE Epilepsy spoke from the heart about the disease and the desperate need to support research and find a cure. Axelrod, the honorary co-chair of the brunch, was joined on stage by “Glee” star Matthew Morrison, People’s cover boy Chace Crawford, and HBO’s “The Pacific” star Joe Mazzello, as well as the Jonas Brothers and Demi Lovato, who showed their support for CURE Epilepsy and MDED by signing a giant Mother’s Day card.

CHERYL HINES: My mom taught me to have fun in life. That’s what it’s about!

RUPERT MURDOCH: My mother told me to look after my sisters!

DANA DELANEY: Tell the truth – it’s easier to remember

STEVE WEBER: Swallow your spit

SUSAN SHER, First Lady’s Chief of Staff: 1. Always wear lipstick 2.
It’s just as easy to fall in love with a rich man as a poor man. (I followed neither.)

WOLF BLITZER: Do the best you can!

ARIANNA HUFFINGTON: Be fearless!

NICK JONAS: Treat women with respect!

JOE JONAS: Coins are not edible!

DEMI LOVATO: Pack clean underwear!

JOE MAZZELLO, HBO’s “The Pacific”: Make it real

DAVID GREGORY: Always wear socks!

KIM KARDASHIAN: My favorite thing my mother taught me is…. To be myself

CHEVY CHASE: Make sure you shake few hands. You can get hurt.

JAYNI CHASE: Wear comfortable shoes.

PATRICIA ARQUETTE: Get quiet and ask God to let you feel who you are …your true self.

BRET BAIER: Always open a door and pull out a chair for a lady!

ANDREA MITCHELL: Watch out when you cross the street

2010 WHC Garden Brunch for MDED and CURE Epilepsy from whcinsider on Vimeo.

Filed Under: Washington Tagged With: Andrea Mitchell, Arianna Huffington, Bret Baier, Chace Crawford, Cheryl Hines, Chevy Chase, CURE Epilepsy, Dana Delaney, David Axelrod, David Gregory, Demi Lovato, Jayni Chase, Joe Jonas, Joe Mazzello, Jonas Brothers, Kim Kardashian, Matthew Morrison, MDED, Nick Jonas, Patricia Arquette, Rupert Murdoch, Steven Weber, Story Landis, Susan Axelrod, Susan Sher, WHC Garden Brunch, Wolf Blitzer

DC: Party Central

April 30, 2010 By WHC Insider

Secretary of Homeland Security Janet Napolitano and CURE Epilepsy's Susan Axelrod at the 2009 White House Correspondents' Garden Brunch

It’s been called the Nerd Prom and compared to Hollywood’s Oscar extravaganza, but the White House Correspondents’ Association Dinner and the parties surrounding it have evolved into their own electrifying entity. Politico takes a behind the scenes look at where the sparks will be flying this weekend.

Filed Under: Washington Events Tagged With: Garden Brunch, Janet Napolitano, Susan Axelrod, WHCA, WHCA Dinner

Garden Brunch Tweet for Moms in 2009

March 30, 2010 By jdonofrio

2009 White House Correspondents Garden Brunch headliners Susan Axelrod (CURE Epilepsy) and Ann Curry (NBC News) led guests in a group tweet for mothers. This year’s brunch will be given in honor of Mothers Day Every Day and CURE Epilepsy.

WHCI Garden Brunch 2009: Mothers Day Every Day from whcinsider on Vimeo.

Filed Under: Washington Events, WHCD 2009 Guests, WHCD History Tagged With: Ann Curry, CURE Epilepsy, Mothers Day Every Day, Susan Axelrod

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Exploring “behind the scenes” of the most powerful reporters and editors in the world, the Washington press corps. We track the White House Correspondents’ weekend and all the activities around it from journalists and media companies to the White House and politicos. Tammy Haddad is Co-Founder and Editor-In-Chief of WHC Insider and she hosts the Washington Insider podcast.

White House Correspondents Insider is not affiliated with or approved by the White House Correspondents Association which is a registered trademark of the WHCA.

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